Community Corner

'His Little Piece Of Happiness': Bellmore Boy With Rare Heart Condition Finds Joy In NY Islanders

4-year-old Caden Manzella has found strength and joy through hockey — and the kindness of strangers across Long Island.

BELLMORE, NY — Four-year-old Caden Manzella has endured more medical challenges than most people face in a lifetime, and he hasn't let them get in the way of anything – especially cheering on his beloved New York Islanders.

For much of his life, young Caden has cheered on his favorite team from home alongside his mother Victoria, father Nicholas, and aunt Lauren. But thanks to the kindness of strangers across Long Island, the young hockey fan has recently had the chance to get closer to the Islanders than he ever imagined.

"The Islanders have been his little piece of happiness," Victoria said.

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Caden at NHIC after the blue and white scrimmage. / Courtesy of Victoria Manzella

Caden was born with Hypoplastic Left Heart Syndrome, a rare congenital heart defect in which the left side of the heart does not fully develop. Victoria said his left ventricle and mitral valve are underdeveloped, and his aorta is small and narrow.

His parents learned about his condition during an anatomy scan. Victoria said they were given three options: end the pregnancy, take him home on comfort care to pass peacefully at home, or pursue a series of surgeries.

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They chose surgery.

At just two days old, Caden underwent the Norwood procedure, the first of three major heart surgeries.

It was incredibly difficult as a newly postpartum mother, Victoria said.

"I didn't get to hold him until he was 5 days old," she said.

Doctors prepared the family for a lengthy hospital stay of upwards of six months, but Caden surprised everyone. He was discharged just 15 days after surgery.

At five months old, he underwent the Glenn procedure and was discharged a week later.

His third and final planned surgery, the Fontan procedure, took place on March 3. While planning a family photoshoot before the open-heart operation, Victoria shared Caden's story online and was overwhelmed by what happened next.

Caden received an outpouring of support from strangers across Long Island. One person gifted the young boy tickets to attend an Islanders game in person.

Shortly afterward, Caden developed complications involving his lymphatic system, causing a buildup of chyle, a fatty fluid. His diet was restricted to just three grams of fat per meal for more than 70 days as he recovered.

But his happiness and the community's kindness continued.

Another community member gifted Caden and his mother tickets to the Islanders' development camp in June. Just days later, they attended a blue and white scrimmage – another gift from a stranger.

Throughout the two days of development camp and the scrimmage, Caden has met players including Danny Nelson, Victor Eklund, Matt Martin, Cal Clutterbuck, Josh Bailey, and Joshua Kotai.

For Caden, these moments have meant everything.

He even slept with his Sparky stuffed animal every night during his hospital stays and kept his Sparky baseball cap with him while recovering, Victoria shared.

"When he met Sparky at the game, he couldn't believe he was there," she said. "He was screaming, 'Sparky! Sparky!' It was a surreal experience for him."

Courtesy of Victoria Manzella

Although Lauren, Caden's godmother and aunt, has always been the Islanders fan in the family alongside Caden's father, Victoria said she never followed hockey closely before becoming a mother.

"I love how happy it makes him," she said. "I have no choice. I'm the number one fan behind him."

Since then, the domino effect of kindness has continued. Caden has received Islanders merchandise, including a Schaefer jersey, a signed puck, a letter from the team before his surgery, and additional tickets to future Islanders events.

The Islanders have become such an important part of Caden's life, bringing him so much comfort.

"He sleeps with the puck," Victoria said.

Caden has also been invited to hockey camp in August, to tour the Islanders' facility, meet more players, and attend training camp in September.

"He cannot wait," Victoria said, adding that he's been telling everybody that he went on the Zamboni.

The first thing he did when waking up the other day was ask if he was going on the facility tour yet.

"I just think it's so incredible," she said. "I did not think all of this would come from that one post."

Despite everything he has faced, Victoria said Caden continues to find ways to stay positive. The young boy calls himself Iron Man and refers to his chest scar as his "superscar."

"I'm biased, but he's so funny," Victoria added. "He's such a people person and will make friends with everybody. He's sunshine."

Caden loves hockey, dancing, singing, and pretending to play instruments. Victoria said he is often the person making others smile.

"He is so sassy and sarcastic," she said. "He will rage-bait you. He's so happy."

On Caden's future, Victoria said it's one day at a time. They are currently in palliative care, and the next steps are to monitor him. Earlier this year, Caden developed RSV, which led to heart failure.

Caden with Sparky at the blue and white scrimmage. / Courtesy of Victoria Manzella

Through it all, she said her son continues to inspire everyone around him.

From having the family portrait photographer paid for by a local deli to multiple Islanders tickets and merchandise – and unforgettable experiences – Victoria said her family is grateful for the community that has surrounded Caden.

"I will never be able to repay everybody for what the community has done for him," she said. "It's more than I would've ever imagined."

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